International Clinical Council on
Fibrodysplasia Ossificans Progressiva

FOP Doctors and Specialists

Mona Al Mukaddam, MD, MS, CCD

Division of Endocrinology, Diabetes and Metabolism;
Ian Cali Clinical Scholar in FOP, Department of Orthopaedic Surgery,
The Perelman School of Medicine – The University of Pennsylvania
Penn Medicine University City
3737 Market Street, 3rd floor
Philadelphia, PA 19104, USA

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Genevieve Baujat, MD

Centre de Référence Maladies Osseuses Constitutionnelles
Departement de Génétique
Hôpital Necker-Enfants Malades
Paris, France

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Matthew Brown, MBBS, MD, FRACP, FAHMS, FAA

Professor of Medicine, King’s College London
Director, Guy’s & St Thomas’ NHS Foundation Trust and King’s College London NIHR Biomedical Research Centre
8th Floor Tower Wing, Guy’s Hospital, Great Maze Pond
London SE1 9RT, England

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Tae-Joon Cho, MD
Division of Pediatric Orthopaedics
Seoul National University Children’s Hospital
101 Daehang-ro Jongno-gu
Seoul 110-744, Republic of Korea
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Corrie Crowe, DDS
1000 White Horse Road;
Suite-916
Voorhees, NJ 08043, USA
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Carmen L. De Cunto, MD
Pediatric Rheumatology Section
Department of Pediatrics
Hospital Italiano de Buenos Aires
Gascón 450, 1181
Ciudad Autónoma de Buenos Aires, Argentina
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Patricia L.R. Delai, MD
Hospital Israelita Albert Einstein
Instituto de Ensino e Pesquisa
Rua Pedro de Toledo 129 cj 121- Vila Clementino
Cep-04039-001
São Paulo-SP, Brazil
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Robert J. Diecidue, DMD, MD, MBA, MPH
Sidney Kimmel Medical College
Thomas Jefferson University
909 Walnut Street – Floor 3,
Philadelphia, PA 19107, USA
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Maja DiRocco, MD
Department of Pediatrics
IRCCS Giannina Gaslini Institute
Via Gerolamo Gaslini 5
16147 Genoa, Italy
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Elisabeth Marelise W. Eekhoff, MD, PhD
Amsterdam University Medical Centers (Amsterdam UMC) location
VU University Medical Center (VUMC) Amsterdam
Department of Internal Medicine/Section Endocrinology
De Boelelaan 1117
1081HV Amsterdam, The Netherlands
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Clive S. Friedman, BDS
Schulich School of Medicine and Dentistry
Pediatric Oral Health and Dentistry
389 Hyde Park Road
London, Ontario N6H 3R8, Canada
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Zvi Grunwald, MD
Department of Anesthesiology
Thomas Jefferson University
111 South 11th Street, Suite G-8490
Philadelphia, PA 19107
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Nobuhiko Haga, MD
Department of Rehabilitation Medicine
Graduate School of Medicine
The University of Tokyo
7-3-1 Hongo, Bunkyo-ku
Tokyo 113-8655, Japan
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Edward Hsiao, MD, PhD
Department of Endocrinology, Faculty Practice
University of California-San Francisco
400 Parnassus Ave., 5th Floor A550
UCSF Box 1222
San Francisco, CA 94143-1222
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Frederick S. Kaplan, MD
The Perelman School of Medicine – The University of Pennsylvania
Department of Orthopaedic Surgery
3737 Market Street – Sixth Floor
Philadelphia, PA 19104, USA
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Dr. Richard Keen, BS, PhD, FRCP
The Royal National Orthopaedic Hospital
Stanmore, Middlesex HA7 4LP
United Kingdom
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Rolf Morhart, MD
Department of Pediatrics
Klinikum Garmisch- Partenkirchen
Auenstr.6
D- 82467 Garmisch- Partenkirchen, Germany
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Joseph A. Kitterman, MD
Professor Emeritus
Department of Pediatrics and Cardiovascular Research Institute
U-503, Box 0734
University of California San Francisco
San Francisco, CA 94143-0734, USA
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J. Coen Netelenbos, MD, PhD

Department of Internal Medicine
Division of Endocrinology
University Hospital Vrije Universiteit
De Boelelaan 1117/ P.O. Box 7057
1007 MB Amsterdam, The Netherlands

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Charles Levy, MD
North Florida/South Georgia Veterans Health Service
Adjunct Associate Professor, Department of Occupational Therapy
Research Scholar, Center for Arts in Medicine
University of Florida
1601 S.W. Archer Road
Gainesville, Florida 32608, USA
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Robert J. Pignolo, MD, PhD
Mayo Clinic College of Medicine
200 First Street, SW
Rochester, MN 55905
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Christiaan Scott, MBChB, FCPaed (SA)
Paediatric Rheumatologist Red Cross Children’s Hospital
University of Capetown Cape Town 7700, South Africa
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Eileen M. Shore, PhD
University of Pennsylvania
Department of Orthopaedics
309A Stemmler Hall
3450 Hamilton Walk
Philadelphia, PA 19104-6081
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Michael Zasloff, MD, PhD
Georgetown University
Med/Dent NW 210
Washington, DC 20007
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Keqin Zhang, MD, PhD
Department of Endocrinology
Tongji Hospital Shanghai
Tongji University 389
Xin Cun Road, Shanghai 200065, P.R. China
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