International Clinical Council on
Fibrodysplasia Ossificans Progressiva

Press Releases

Most Recent – 2024

• July 2024 – Updated Treatment Guidelines
• May 2024 – ICC Statement on Off Label Medications

Archive News – 2024

• March 2024 – ICC Statement on Off Label Medications

Archive News – 2023

• August 2023 – ICC Statement on Palovarotene
• Augosto 2023 – Spanish Statement on Palovarotene

Archive News – 2022

• May 2022 – Updated Treatment Guidelines
• May 2022 – Updated Coronavirus (COVID-19) Vaccine Recommendations
• January 2022 – Updated Treatment Guidelines
• January 2022 – Updated Coronavirus (COVID-19) Vaccine Recommendations

Archive News – 2021

• August, 2021 – Updated Treatment Guidelines
• April 12, 2021 – Updated Treatment Guidelines
• March 18, 2021 – Coronavirus (COVID-19) Vaccine recommendations

Archive News – 2020

• December 30, 2020 – Updated Coronavirus (COVID-19) Precautions for FOP Families
• December 2, 2020 – Editorial from the ICC regarding clinical trials
• July 17, 2020 – Updated Coronavirus (COVID-19) Precautions for FOP Families
• March 27, 2020 – Updated Coronavirus (COVID-19) Precautions for FOP Families
• March 18, 2020 – Revised Coronavirus (COVID-19) Precautions for FOP Families
• March 16, 2020 – Coronavirus (COVID-19) Precautions for FOP Families

Archive News 2019

• March, June, 2019 – Updated Treatment Guidelines
  
• May 2019, ICC’s statement on FOPCon

Archive News – 2018

• September 2018, publication from ICC regarding special clinical trial considerations in FOP
  
• March 2018, Announcement of ICC on IFOPA website