International Clinical Council on
Fibrodysplasia Ossificans Progressiva
Key FOP Publications
We are delighted that there is a large and growing number of publications related to FOP. Below are a few selected publications that support the core knowledge about FOP. Please contact any member of the ICC if you feel additional publications should be added!
Special considerations for clinical trials in fibrodysplasia ossificans progressiva (pdf)
Clinical staging of Fibrodysplasia Ossificans Progressiva (pdf)
A cumulative analogue joint involvement scale (CAJIS) for fibrodysplasia (pdf)
Joint specific risk of impaired function in fibrodysplasia ossificans progressiva (pdf)
Longitudinal patient reported mobility assessment in FOP (pdf)
The Natural History of Flareups in FOP (pdf)