International Clinical Council on
Fibrodysplasia Ossificans Progressiva

FOP Treatment Guidelines

This version of the FOP Guidelines, written in English, is the only version reviewed and endorsed by the ICC. The ICC acknowledges that this document may be freely translated into other languages, but does not guarantee the accuracy of any such translations. To the extent possible, any translation of the FOP Guidelines should be performed and reviewed by bilingual medical experts from the country where the translation is intended to be used.

Current Treatment Guidelines

• Guidelines as of July 2024 (pdf)

Previous Guidelines

• Guidelines as of May 2022 (pdf)
• Guidelines as of January 2022 (pdf)
• Guidelines as of August 2021 (pdf)
• Guidelines as of April 2021 (pdf)
• Guidelines as of January 2020 (pdf)
• Guidelines as of June 2019 (pdf)