International Clinical Council on
Fibrodysplasia Ossificans Progressiva
Jan. 2022 – Dec. 2023 Leadership
ICC Officers
Chris Scott
Chairman
Patricia Delai
Vice Chairman-Elect
Ed Hsiao
Secretary/Treasurer
Richard Keen
Secretary/Treasurer-Elect
Governance & Membership Committee (G&MC):
Function: To establish the ICC governing rules, membership terms, auditing processes, bylaws
Mona Al Mukaddam
Chairperson
Ed Hsiao
Chair-Elect
Ethics Committee:
Function: To guard the health and safety of FOP patients by supporting transparency and compliance with Good Clinical Practices
Clive Friedman
Chairperson
Mike Zasloff
Chair-Elect
Communications & Relations Committee:
Function: To provide the external communications to the public
Ed Hsiao
Chairperson
Vrisha Madhuri
Chair-Elect
Publications Committee:
Function: To revise and publish the clinical guidelines and provide the resource for all materials published on behalf of the ICC
Bob Pignolo
Chairperson
Fred Kaplan
Chair-Elect
Clinical Trials Committee:
Function: To provide guidelines for clinical trials in support of safe and transformative treatments for FOP.
Carmen DeCunto
Chairperson
Bob Pignolo
Chair-Elect